Our 1st week home...

Lilyann playing in her bouncy chair
Dakota helping Daddy mow the backyard
Dakota--playing outside
Lilyann--we laid her down in the grass--this picture came out so perfect..a true picture of innocence

And so far, everything is going pretty good. The first day home was a little overwhelming; with not having to take care of 2 kids for a week, and then trying to get back in the groove of 2 kids wanting my attention. Lilyann is doing good. I took Lilyann to the pediatrician on Wednesday (the day after we got home from the hospital). Lilyann cry was so hoarse, and she acted like it hurt to swallow. So i took her in, and the Dr takes a look and notices that Lily's throat is red...and then when i tell her how Lily acts when she eats, we find out it is Lilyann's reflux--it has flared up again. Since the prevacid made Lily throw up, the Dr put Lily on Zantac two times a day. It seems to be helping with the reflux. Now her cries and coos aren't hoarse anymore. Lily is like a new little girl: playing, eating (from a bottle), and smiling lots.

This passed Saturday was so pleasant that Jed and Dakota mowed the backyard (yes, Dakota helped) and Lilyann and I sat outside (while she was awake) and watched. It is surprising to see such a drastic change in Lilyann. Her color is better, she is much more active, and she is starting to talk more. Also, she has found her hands and they are always in her mouth (she is teething!!) We are introducing her feet to her...she finds them amusing, especially when they hide mommy and daddy's face.

Dakota is thrilled to have "Lily Lu" home...he calls her "pretty girl" (he gets that from daddy).

Oh!! i almost forgot, at our Dr's visit last Wednesday, they weighed Lilyann..and she was 11.4 lbs (with her clothes on) She is gaining weight all ready!!

On Wednesday, Lilyann will be 5 months old...it seems like just yesterday i was going to the hospital to have her...wow! they grow so fast! Also, on Wednesday, I (mommy) am going to have a birthday...can you guess how old???

Lilyann is Home!!

We were discharged from the PICU this morning...the doctors came through making rounds and we asked for discharge instead of waiting for a room to open up on the pediatric floor. Well, the cardiologist said that she would check to see why we where still being held there...They did a chest x-ray and everything came back fine....so we were given the okay to go home. Around 11am, we left Medical City Children's Hospital....and headed home....without the feeding tube!!!

so...about 1 hr shy of being exactly 1 week since Lilyann came out of surgery...we were discharged.

God is Good!!
I hope you all enjoy this slideshow of our week at the hospital and Lilyann's progress.

We are leaving the ICU

Yes!! we have the okay to leave the ICU...but we are still there. We are waiting for a room to become available for Lily. All of Lily's IVs, and tubes are out. She only has the sticker monitors on her and the pulse reader. They moved her into a crib...so she has her mobile up now, but she is asleep in Daddy's arms. Since yesterday, she has taken all her bottles by mouth...she is now up to 75ml (2.5 oz) by mouth every 3 hours. She is finally in her own clothes...and that makes a world of difference. Now just to get her to a regular room, so we can get our Lilyann home.

Thank you for the prayers and let us all continue to pray for her recovery.