Pull up a chair and sit on the floor....

Current mood: focused
So i called/checked in with the Dr. this morning about Lily's eating. The Dr is okay with how much Lily is eating right now..she just said to continue monitoring her intake. Since Wednesday, Lily has been eating about 8.5 oz to 13 oz a day...averaging anywhere in between those. Im considering a good day for Lily's eating, when she eats at least 10 oz. So we have had some pretty good days. If Lily has a decrease in her intake, then we are to take her back to the Dr for them to evaluate her weight.
So we are still just kind of watching and waiting. That is why i titled this blog "Pull up a chair and sit on the floor" because it sounds like we are going to be monitoring Lily's intake and weight for awhile.
The title is a phrase my dad used to tell everyone when he wanted them to take a seat...it always made me smile when Dad will tell someone that and then they would take a seat and realize (with a confused look on their face) what my dad said.
Our followup visit with the pediatric heart specialist is scheduled for Feb 21st...so we should know more on what is happening with Lily then.
Thanks for all the warm thoughts and prayers that are being sent our way.

I added some pictures here of our weekend outing...we took Dakota and Lily to the zoo. Dakota had a great time...Lily slept almost the entire time at the zoo.

Lily is eating more

I just wanted to add...Lily is up to 12. 5 oz of formula for today...She did great!! im so excited that she is eating better...This is the best she has eaten in 2 weeks.

And i actually got some smiles out of the kids today!! Thought you would enjoy the pictures.

Let go....and Let GOD!

So most don't know that we are not only struggling emotionally with what is going on with Lily, but we are also struggling financially. We found out about 2 wks before the heart murmur was found that we had missed our 30 day grace period to add Lily to our insurance...due to a communication problem, we missed it by 2 days. So when we found out that Lily had a heart murmur and they wanted to do an echo of her heart and then send her on to Dallas for further observation...we were so scared and worried about Lily in addition to knowing that we didn't have insurance. So in the past 2 weeks, i have been on the phone calling and appealing the denial...in addition to signing up for any means of financial assistance. I applied for CHIPs (children's insurance plans). It is given by the state depending on your income, etc. And we would only have to pay small copays for the CHIPs.
Since applying for the CHIPs, I have been calling to check on the status of our case...and today, they tell me that they have forwarded our case to Medicaid...because Lily will probably (it's not for sure yet) be covered through Medicaid. That would mean that we wouldn't have to pay a cent for Lily's surgery, hospital stay, nothing...and they would go back and cover any bills for the last the 3 months. I was almost crying as the representative was telling me this...What a burden that has been lifted off our already heavy shoulders.
**If Lily doesnt qualify for Medicaid, we still have the financial assistance from CHIPs**

I know this was God's way of letting me know "that all things work together for good"....We were so frustrated when we found out she was denied insurance coverage...but God had a reason...He didnt want us to have to worry about the finance part at all. He wanted our full attention given to Lily and her recovery without our worrying about money. I guess we just need to let go, and Let God.

Thank you for your prayers and keep them coming...Lily is having a good day today...she has already eaten 8 oz of formula and the day isnt even over yet...Im so happy that she is eating...if she keeps it up, then we definitely wont have to go the route of a feeding tube.