well, we just got home from our visit to the heart specialist. Lily definitely has a hole in her heart and it is a medium to large hole. The doctor gives Lily a 15% chance that she will NOT have to have the surgery...meaning that there is an 85% chance that she will. :( The surgery will be open heart surgery to patch the hole in the septum between the right ventricle and the left ventricle. We see the specialist again in 4 weeks, unless Lily fails to gain any weight..She will be weighed again on Wednesday and if she doesnt gain the amount of weight the drs would like, we are back to Dallas for another EKG and echo of her heart...to see how much more the heart has enlarged and if the hole has gotten any bigger. And depending on the the "damage" they will then schedule her for open heart surgery. The dr said we would be looking at a 10 day to 2 week hospital stay with her.
There is that 15 % chance that the hole can heal on it's own if Lily can gain more weight and help her heart out.
the dr put Lily on 2 meds to help get rid of fluid in the lungs and also something to help with the heart's muscles...dont remember the names of the meds offhand.
It was a good visit...the dr was very nice and made us all feel at ease. Lily just looked around and tried to coo thru her EKG and then she fell asleep for her echo of her heart...so she did really good with her tests today.