Diagnosing Children:
Severe heart disease generally becomes evident during the first few
months after birth. Some babies are blue or have very low blood pressure
shortly after birth. Other defects cause breathing difficulties,
feeding problems, or poor weight gain. Minor defects are most often
diagnosed on a routine medical check up. Minor defects rarely cause
symptoms. While most heart murmurs in children are normal, some may be
due to defects.
If the heart problem is significant, your child's pediatrician or
family physician will likely refer your child to a pediatric
cardiologist. Pediatric cardiologists are trained to diagnose and treat
heart problems in infants, children and young adults. They have the
training and equipment to find out what tests and treatments your child
will need, and how often your child will need heart checkups in the
future.
Lilyann was diagnosed with a Ventricular Septal Defect (VSD). Usually a VSD will close on it's own over time. But in Lily's case, this was not happening. While it wasn't getting bigger, she wasn't thriving. The next step was to repair it. This meant open heart surgery for our little girl.
It was a lot to take in at that time. Knowingly passing your child to "strangers"...pretty much putting her life in their hands was the hardest decision. But a good decision. The doctors fixed her heart. Lily is so proud of her zipper. When asked about it, she tells about how the doctor fixed her sick heart and gave her a zipper.
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