Tuesday, April 15, 2008
Evening update...from today's surgery
wow!! today was a day..I'm so exhausted...and i feel like I'm not really helping..because every time we go into Lily's room...she seems us, starts crying (it is such a heartbreaking cry!! ) it breaks my heart. i cant hold her yet...when she gets out of the PICU..we should be able to hold her. She is on morphine still every 2 hours. She is off the ventilator..it was helping her breath better, because they want her oxygen stats to stay at 100%. She is now on a little oxygen because her oxygen stats were dropping again...she was on a temporary pacemaker..to help regulate her heartbeat...right now, the pacemaker is on standby...just to be there to help when she her heart starts to race or skip a beat.she is still bleeding a little more than the Dr's would like...so they are running some labs on her blood...to see if she needs some help with getting her blood to clot...they did have to give her some more blood earlier today...She is putting out enough urine as of now. She still has a total of 8 cords/lines coming off of her. In the morning, she will get a bath...and they will put her blanket, her puppy, and some familiar things from home in and around her bed.this is so stressful, but thankfully...today was the first day that i didn't break out in hives. Dakota is now with Jed's aunt..and will be with them until Jed gets back on Sunday. The Dr's are "letting Lilyann make the rules" --she tells them when she is ready to move to the next step...we are just taking it slow and steady. I have pictures of Lilyann...but i didn't bring the cord to load them...so i guess no pics until we get home. She is definitely a trooper...she has been thru so much in just the last few hours. i thank you for all your prayers, well wishes, and hugs....you don't know how much it means to me and my family.