Lily is doing awesome!! Today, we got to hold her for the first time since her surgery!! it felt so good to have my baby girl back in my arms. Just holding her gave me a boost of confidence.
Lily is still in the PICU--they are monitoring her heart rate...she is still on the meds to keep her heart rate low. All of Lily's tubes/cords are out, except for the IVs for her meds and fluids. Occupational therapy was called for Lilyann to help with her eating. She isnt acting interested in the bottle right now...so, they will probably put the feeding tube back in..but at least she can get a full tummy and be a little more comfortable.
Continue to pray..i will update again when i have a chance